Retaining several generations of participants in longitudinal cohorts and ensuring that the participants continuously contribute with new data and support data sharing, is challenging. Participants gradually drop out, do not respond to data collection requests, or simply lose interest in the study. Young people, disadvantaged socio-economic groups, and ethnic minorities are particularly difficult to retain for a long period of time. Participant engagement aims to maintain the interest of participants in the study and encourage their participation and commitment over its lifetime. European cohorts are gradually developing participant engagement strategies including innovative tools for recruitment and informed consent collection, data collection and ongoing communication with, and involvement of, participants. At this digital workshop, the strategies of key European cohorts will be presented and discussed, and experiences exchanged. Work conducted to map participant engagement strategies in European cohorts will also be presented. The workshop is jointly organized by BBMRI-ERIC and Biobank Norway.
EBW is jointly organised by ESBB and BBMRI-ERIC with this year’s theme “Biobanking for our Future – Opportunities Unlocked”.
Taking our community’s feedback into account, we have improved the virtual concept to create new opportunities to attend sessions and enjoy all the scientific insights from speakers and panellists from around the globe. #EBW21 is the unique opportunity to meet representatives in biobanking as well as other scientific experts from healthcare, academia, and industry!